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Winnipeg Family with “Harry Potter”-Themed Halloween Decorations Hope to Raise Awareness of Genetic Disorders

by Aly Kirk · October 9, 2019

It’s officially the spooky season! You know what that means – it’s time to grab your pumpkins and start decorating. That’s what this family in Winnipeg, Canada, has done, but their Halloween decorations have a magical twist. The Siedler family’s front lawn is covered with everything Harry Potter.

All four of the Hogwarts House banners are hanging from the front window, and they even have a miniature Quidditch pitch spanning some of the lawn. While we relish in their decor choice, we love the reason behind this particular lawn even more. Willow Siedler, four years old, was diagnosed with a very rare genetic disorder known as NGLY1 deficiency. The mutation of the NGLY1 gene results in severe developmental problems. Fewer than 100 people in the world have received this diagnosis.

Anna Siedler, Willow’s mother, drew from her own love of Harry Potter as a way to raise funds for NGLY1 deficiency research to help her daughter and others.

 

The Siedler family's miniature Quidditch pitch sits in their front lawn with a donation box for NGLY1 research funds.

 

In an effort to gain more funding for research, the family has placed a donation box in the array of decorations. They have also set up a donation page online through the Grace Science Foundation.

 

The Siedler family.

 

Dr. Grant Pierce at St. Boniface Hospital says the rarity of the disorder can make it difficult to find effective treatments and a possible cure, but the Siedler family hasn’t given up hope. Funding from the government and hospitals like St. Boniface can provide the necessary resources to focus the researchers’ efforts in rare cases, such as Willow’s.

All donations received by the Siedler family from their Harry Potter donations box and their online campaign will go toward research for Willow’s condition. Head to Willow’s Web to donate!

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Did You Know

Quidditch started in the 11th century at a place called Queerditch Marsh, which is not marked on Muggle maps because wizards have made the place unplottable. Originally, it was quite a crude game played on broomsticks with just the Quaffle.

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January 3, 2006 – Harry Potter and the Goblet of Fire was named the highest-earning film internationally for 2005. It earned $850 million.

Potter Quote

“Cedric was a person who exemplified many of the qualities that distinguish Hufflepuff house. He was a good and loyal friend, a hard worker, he valued fair play. His death has affected you all, whether you knew him well or not. I think that you have the right, therefore, to know exactly how it came about. […] Cedric Diggory was murdered by Lord Voldemort.”

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